Tag Archives: inclusion

Acceptance and Inclusion, It’s Only Human.

acceptance

When we first became aware that autism is a part of our lives, I welcomed Autism Awareness Day. I wanted other people outside of our family to “get it”.

But a funny thing happened: Nothing.

One day a year of proclaiming support and understanding doesn’t actually make up for a year’s worth of not getting it.

Then I realized that awareness was never going to work. Each and every autistic individual is the same as everyone else in the world, that is to say unique . One individual’s experience is merely that, one individual’s experience. So learning that a child in your community is non-verbal or has sensory issues does not mean that you “know” autism. It means that you know of the characteristics of that individual.

Then, as I learned more about the autistic and autism communities (autistic community being composed of individuals with autism and the autism community being their families) I realized that the blue shirt campaign is the very successful campaign of a single organization that does not recognize autistics as individuals. It is a campaign of scare tactics used to raise money by promoting autism as an evil thing that is to be exorcized from our family members. Autism is neither evil nor a tragedy. It simply is. Autism Speaks does not allow autistics to have a say on their board. It does not represent autistics. This is why I do not support the light it blue/blue shirt campaign.

What I struggle with most is why anyone who is neurologically different, physically different, emotionally different, gender non-conforming, gay or any other kind of “difference” has to ask for you to be aware of their individual specific circumstances. Why is it so difficult to simply accept and include them? No one will be offended if you ask what you can do to make their inclusion go more smoothly.

And please do not get me started on inclusion and acceptance in our schools, because on the surface it’s supposed to happen, but in reality rarely does. The reasons are complicated but do include the fear factor When we remove that fear, then we pave the pathway to acceptance and inclusion.

Today I ask for you to ask yourself why you struggle with acceptance and inclusion and to please do something to change that.

There are books on this subject, and there are many, many blog posts, most written by people far more eloquent than I. I have linked to several of them below so that you can read them and educate yourself. And find a way to accept and include everyone, no matter their individual circumstances.

#autismacceptance #autisminclusion #acceptanceoverawareness

The Color Blue

No more

We are not broken

This is what acceptance feels like

Not Blue

I will not light it up blue

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I Never Expected this to Happen in the Schoolyard

I rarely go into the school yard any more. Haven’t for a couple of years. The two older kids are “too old” for mom to hang around with the other moms in the yard. “Too old” to be seen hugging and kissing me.

I have carefully respected these feelings. When I walk them to school, I stop at the crossing guard, watch them across the street, then continue on my walk. We created a signal (fist bump and hand clap) to represent hug and kiss.

The two weeks though, the street their school is on has been plagued by heavy construction as curbs are replaced and parts are resurfaced so we have been taking an alternate route to school. It leads me though away from the lake where I like to walk our dog and baby each morning. So I have been walking around the back of the school yard to a bike path on the other side which gets me around the construction and out to my typical walking area.

Walking through that yard brings back quite a bit of nostalgia. Watching the little kids in Kindergarten, the slightly bigger kids lining up to go into the primary grades, the hovering parents standing in clumps waiting to make sure their little one gets into the school safely.

I don’t know why it causes so much nostalgia, I mean I know I’ll be back there again in a few short years. But by then the older two will both be in high school (even the thought of that takes my breath away– weren’t they just in kindergarten yesterday?)

Yesterday morning we were running a little later than usual and I barely got a chance to fist bump them as they ran to get in the doors. A mom walking back up towards the street looked at me, indicated my eldest and said “He’s yours?”

“Yes.” I said a bit warily, dreading what I was about to hear.

“I just wanted to tell you that your son is amazing. I know he’s had a rough year and that no one has said that to you. But he’s really great.”

I think I said “Thank you.” I certainly hope I did. Who was this woman? And what has she done with the typical way people avoid talking about him.

We ended up chatting for about twenty minutes or so. It turns out that she is a lunch supervisor and has gotten to know my son that way.

What she doesn’t know is that those lunch hours when she chatted with him, that she was providing much needed social interaction for him. The kind that many parents avoid with him. The kind that you can’t force people to do.

When I told my son about her and her compliment, he got a HUGE smile and said “She’s nice. I like her.”

And for me? That woman showed me that even in the wrong school, the right people can still be there. That someone saw our son for who he really is. Not for what his challenges are.

She made my day. No. She just made the rough year fade back a bit. And for that I am grateful.

Just How Hard is it to be Inclusive?

bully meme

Many years ago, when I was in College I had a classmate whom I admired very much. And not in a romantic way at all. He was the first person I had met who was so comfortable in his own skin and identity. On our first day of class, fresh out of high school for him (I of course was *so* mature having been in university prior to this), he showed up with purple hair, beaded necklaces and a shirt that loudly spelled it out for anyone who didn’t get it: “FAG”.

This was in the mid-90’s and up to that point I had not seen much acceptance at the high school level. He clearly had had lots of it, and wasn’t going to back down for anyone.

Why do I bring this up now? Because not everyone accepted him for his differences. In fact we were in the same building as the Law and Security Program which unfortunately lived up to it’s stereotype with a lot of bullying jocks in it. They used to make comments to him and push him around in the halls. One day, he’d had enough and he followed them into their class, stood at the front until he had their attention and then dared them to beat him up right there in the classroom in front of their peers. Of course no one took him up on it. But they also left him alone after that.

I’ve always admired that about him. I only wish I’d been there that day to see what he did and to support him while he did it.

Recently, a video has gone viral of another boy attempting to do the same thing.

I don’t know what’s more sad about this video a) that the kids were laughing at him or b) that he even had to do this in the first place.

Why in 2014 are we still encountering this kind of despicable behaviour? Children are only bullied on a continual basis if the bully’s behaviour is tolerated or encouraged by the adults in their life. When teachers and parents create an environment where ostracizing another student is not acceptable behaviour, then it simply won’t happen. When a blind eye is turned to it we run into situations where children are committing suicide rather than be bullied for another day.

Growing up, we had developmentally challenged children integrated into our gym, art and music classes and they often accompanied us on field trips as well. It was a part of the school experience and we were expected to participate. There was no other option. Never were these children treated as lesser than. I remember bumping into one girl several years later in high school and sitting with her at lunch chatting about her favorite boy band. I often wonder where she is now.

That was in the 70’s and 80’s, so why is it still so hard?

Yet inclusion does happen. While searching links for this post I found this lovely article out of Alberta and in talking to a couple of moms with children with special needs, I heard of a similar story where a way was found to include a wheelchair-bound student.

I wonder then, has inclusion become automatic for physical challenges such as wheelchairs, while neurological differences such as Autism are still in the dark ages for systemic inclusion?

I know it is in our school. Our son has missed out on every field trip this year. Once we chose not to let him go on an out-of-province trip when the promised support (the principal who was to be his “buddy”) backed out a few days before the trip and we knew that the teachers going simply don’t have his best interest at heart, but other times because there was no staff member going who cared to put the effort in to making sure that he was able to successfully participate. Yes this is odd, even for our school, where he has gone on every other field trip ever. But it is also representative of our experience this year. And I know that if we are dealing with it, so are other families. (as I keep hearing when I bump into them at the grocery store and the school yard and out on the street)

Why do we not yet have a system in place that demands inclusion for all children, one that does not tolerate exclusionary or ostracizing behaviour from students, teachers, and other parents? It wouldn’t have to be an iron-clad set of rules, but rather needs to be a culture and environment carefully nurtured and developed by those in charge.

Members of the Media: Stop endangering my son’s life

This. This is why I don’t believe in Autism Awareness — an “awareness” promoted by parents complaining just how awful their child with Autism is. How their lives changed for the worse the day of diagnosis.

“Awareness” is not acceptance nor is it inclusion. When we promote inclusion and acceptance we promote support. Support for the person with Autism. Support for the caregivers. And we do not tolerate articles that say “so severely autistic that they can’t speak”. Speech is not an indicator for competence or intelligence.

It’s time we all stood up and demand acceptance, inclusion and support.

Spectrum Perspectives

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Social Inclusion at School

I follow a an amazing blog, Diary of a Mom, probably one of the most thoughtful and insightful bloggers about autism that I have ever encountered. Currently she has been posting a lot about transitioning her daughter to a new school next year, and is questioning how inclusion is done in her experience.

All of her posts are worthy of reading, but this one in particular is phenomenal. My favorite quote from it is:
“But above all, we want to ensure that we’re not engaging in symbolic inclusion at her expense. That we’re giving her opportunities for the real connections and real relationships that she so obviously craves.”

For years, we have worked very hard to have a supportive team for our son. Yet his social life is very lacking. His classmates haven’t invited him to a party in years. The one that was playing online games with him and having the odd play date with him has chosen NT kids to hang around with instead.

The parents are worse. One went so far as to turn her back to me while speaking with all the other moms at a field trip.

A few months ago, he told me that most days he only talks to the grown ups at school. He often doesn’t say more than “Hi.” to his classmates and they to him.

In that kind of environment, how can his social skills possibly grow?

To again quote from that same post, “Geographical inclusion is not inclusion.”

The answer is clear: he needs to be in a social environment of his peers. Not a large group of NT peers, but a smaller group of other children with similar challenges. And facilitated social interaction, led by someone who truly knows how to teach them to interact.

If only it were that easy though. In our area, the only chance at a public education like that is to put him in an ME (multiple exceptionality) class. If we could find a space. But as a gifted student, that would not be the best fit. Maybe we could put him in the gifted program. If we could find a suitable method of transporting him there. And if we could get a guarantee of some EA support.

If we could find a local private school that suits our needs, and if it fit in our budget that might work too. So far, our research has only turned up one, and we question the appropriateness of it after conversations with the mothers of at least three different former students. I’m not interested in putting myself in the path of a lawsuit for not following the rules, or choosing to go elsewhere.

That’s a lot of “if’s”, with no real solution. Yet. As a mom of a child with autism, I will always keep looking, keep trying and keep hoping.

I have been told by two separate families that the local high school is well equipped and the SERTs are phenomenal. But again, will we just be including him for the sake of inclusion? Will he truly get the social supports that he needs. Or will he be cast adrift, forever on the outside. Always looking in the window but without the keys to get inside?