Tag Archives: Autism spectrum

Acceptance and Inclusion, It’s Only Human.

acceptance

When we first became aware that autism is a part of our lives, I welcomed Autism Awareness Day. I wanted other people outside of our family to “get it”.

But a funny thing happened: Nothing.

One day a year of proclaiming support and understanding doesn’t actually make up for a year’s worth of not getting it.

Then I realized that awareness was never going to work. Each and every autistic individual is the same as everyone else in the world, that is to say unique . One individual’s experience is merely that, one individual’s experience. So learning that a child in your community is non-verbal or has sensory issues does not mean that you “know” autism. It means that you know of the characteristics of that individual.

Then, as I learned more about the autistic and autism communities (autistic community being composed of individuals with autism and the autism community being their families) I realized that the blue shirt campaign is the very successful campaign of a single organization that does not recognize autistics as individuals. It is a campaign of scare tactics used to raise money by promoting autism as an evil thing that is to be exorcized from our family members. Autism is neither evil nor a tragedy. It simply is. Autism Speaks does not allow autistics to have a say on their board. It does not represent autistics. This is why I do not support the light it blue/blue shirt campaign.

What I struggle with most is why anyone who is neurologically different, physically different, emotionally different, gender non-conforming, gay or any other kind of “difference” has to ask for you to be aware of their individual specific circumstances. Why is it so difficult to simply accept and include them? No one will be offended if you ask what you can do to make their inclusion go more smoothly.

And please do not get me started on inclusion and acceptance in our schools, because on the surface it’s supposed to happen, but in reality rarely does. The reasons are complicated but do include the fear factor When we remove that fear, then we pave the pathway to acceptance and inclusion.

Today I ask for you to ask yourself why you struggle with acceptance and inclusion and to please do something to change that.

There are books on this subject, and there are many, many blog posts, most written by people far more eloquent than I. I have linked to several of them below so that you can read them and educate yourself. And find a way to accept and include everyone, no matter their individual circumstances.

#autismacceptance #autisminclusion #acceptanceoverawareness

The Color Blue

No more

We are not broken

This is what acceptance feels like

Not Blue

I will not light it up blue

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The Waiting Game

So, we’ve been put on several wait lists, and are waiting for other appointments.
One intake put us on a central wait list for services in 12-18 months!
One intake lead to another intake in two weeks to then put us on a wait list.
Our developmental ped can see us in five-six weeks.
We see a consultant in two weeks.
Our homeopath sees us though next week. Always easy to get in to services that you pay out of pocket for!

We are exhausted by all of this. His meltdowns are draining for us, and terrifying for the younger two. Our baby has night terrors/nightmares each time there has been a crazy meltdown. Our daughter was late for dance again last night as we both drove all over the place looking for our son who took off and decided to walk home in the dark without really knowing how he was getting there or getting in (did I mention it was around zero?)

The school is working with us. And the SERT and Principal are working with the teachers, especially the one who has never dealt with autism (a hazard for sure when you put your child in French Immersion as traditionally any extra needs have been de-streamed out even if it’s not in the child’s best interest. We fought against that, but now sometimes have teachers who have never had to accommodate a student in twenty years of teaching!)

Basically we are tired, worn out and dreading our upcoming weekend holiday that was booked before this latest eruption of behaviours.