a MUST read for all parents
“In fact, there continues to be extreme ignorance about autism, and autism-awareness efforts still obviously matter. They just need to be improved. Perhaps a synthesis can take place, in which autism-acceptance outreach and marketing campaigns are languaged, framed, and disseminated in ways that foster basic awareness, as well.
But autism advocates are also utterly right in their condemnation of lowest-common-denominator approaches as unacceptable, based on the idea that spreading any message about autism increases awareness and thus is beneficial. This leads to marketing based, sympathy-inducing storytelling that assumes autism as burden and curse to raise awareness and, often, money.
These marketing organizations think they’re not just doing no harm but actually doing good. But they usually are closed-minded and won’t truly listen to or consider contrary perspectives that might improve the work they do.
Anti-autism prejudice is damaging no matter the intentions, no matter how much money is raised, no matter how many views or clicks an article receives online.”
My son, Nicholas, was featured on the cover of the major western North Carolina weekly — the Mountain Xpress — a couple of weeks ago and the cover is, without question, The Best Cover Ever. Featuring a photograph by Tim Robison and art design by Megan Kirby, it’s something to frame for Nicholas’ lifetime.
Also, and sadly this part appeals to me, if I put it in a frame I won’t read the Mountain Xpress article, in which my family and two other families are profiled, again. And Nicholas won’t be able to read it, either.
When you’re unhappy with a piece you’re featured in, it’s always disorienting. You inevitably get lots of enthusiastic response from people who care about you and who think press coverage is a kind of special honor — mixed with upset response from people who care about you and know better.
You want to…
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